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ataxia

MIBG Scan

What is an MIBG Scan? According to the Cleveland Clinic, “An MIBG scan is used for localization of known or suspected neuroectodermally derived tumors, including pheochromocytoma, ganglioneuroma, ganglioneuroblastoma, paraganglioma, carcinoid tumor and neuroblastoma.” This is something that I have requested from several hospitals but was always told no.  Now, we are embarking on a new …

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OMS Warrior Playing Baseball

OMS Warrior Playing Baseball.  Who would have EVER thought that this boy would be able to play t-ball?  Not me!  Well, I take that back, we were going to have him play BUT he was going to use his wheelchair or gait walker. Wheelchair vs Gait Walker This time, last year, he was in a …

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Reflecting on an Anniversary I Would Rather Ignore

Reflecting on an Anniversary I Would Rather Ignore.  It has been 2 years.  So much is the same, yet so much has changed. But, on this day,   Our Lives Changed Forever Anniversary I Would Rather Ignore. What began as a somewhat normal day. Turned into…… A nightmare. Get up at 8:15 am G got …

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Reflecting on our Amish Iridologist Reuben Schwartz

On the Road Again Reflecting on our Amish Iridologist Reuben Schwartz.  Here we go, back to the Amish Iridologist Reuben Schwartz, so he can Look Deeply Into My Eye.  As we travel back to Hestand, KY, we meet up with Dr. Reuben Schwartz.  I’m so thankful that the trip is not too long, about 4 …

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Reflecting on this Open Letter

Reflecting on this Open Letter to the Public.  There are days when it doesn’t bother me.  Yet, there are days when it does.  Believe me, I pay attention.  Also, my son and my other kids…they pay attention.  They all wonder why people are staring or whispering.  It is uncomfortable to watch some of the reactions …

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Reflecting on Looking at a Miracle

Reflecting on Looking at a Miracle. “Did you even know that you were looking at a miracle?” That statement was said to me, at the chiropractor’s office.  In the midst of my self-imposed chaos, that statement made its way from a gentleman’s mouth to my ears. I just sat there, with my mouth open and …

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Reflecting on Meeting My Okapi

Unconventional Treatment Reflecting on Meeting My Okapi.  As we were finishing up an “unconventional” treatment plan for our son, we decided to give our family a bit of respite.  When you have 11 people in your immediate, your feet are under my table for food, family….everyone is going in a different direction. We have one …

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Reflecting on Praising God in the Storm

Continuing to Praise God Reflecting on Praising God in the Storm.  When things are running smoothly, and all things are moving and grooving in a good flow.  I picture my family and me sitting around a campfire singing Kumbaya.  Then, you see your fire starting to go out, and it is getting cold outside, and you …

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Reflecting on Blooming Where You are Planted

Reflecting on Blooming Where You are Planted.  Fall is finally here and guess what?  It brings rain.  That’s okay, we need it and I love a good gentle rain with a nice breeze. Waking UP is Hard to Do This morning, I woke up with a start.  I never heard Hunter make all the sounds …

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Reflecting on My Boy Walking Without Assistance

Life before: Realize this is still pretty good compared to where he got before this treatment. Reflecting on My Boy Walking Without Assistance Reflecting on My Boy Walking Without Assistance after 3 intensive days of therapy. I can’t even adequately verbalize my emotions.  Amazingly, I watched him stand up, by himself.  As a result, this …

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