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Life or Something Like It

Life………or something like it.

Happy Birthday Daniel

Happy Birthday Daniel Happy Birthday Daniel.  Today is his 15th birthday.  I do not know what time he was born.  That hurts my heart.  I wasn’t there to hold him or snuggle with him.  For the first part of his life, I couldn’t keep him safe.  That truly hurts my heart. His Entrance into Our …

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YouTube Videos

YouTube Videos I have been working hard on these YouTube Videos.  It has been emotionally draining watching each and every video I have taken of Hunter.  My goal is to bring awareness to Opsoclonus Myoclonus Syndrome. Misdiagnosis Hunter was misdiagnosed MULTIPLE times over the course of the 2 years that he got sick.  OMS is …

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Little Bit of Everything Going On

Little Bit of Everything Going On There has been Little Bit of Everything Going On lately.  Last week, I spent several days in St. Augustine, FL with my daughter and son.  We went to get his treatment and learned so much, again. It has been mentioned to us that one of our children has “recovered” …

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Falling Down the Rabbit Hole

Falling Down the Rabbit Hole Here I am, sorting through the 58,882 pictures and the 1300 videos and it happened.  I began Falling Down the Rabbit Hole of memories.  Frankly, I am an emotional wreck! The Basics I mean there are the annual Christmas pictures, birthday pictures, and such.  Those pictures are fun to look …

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Addictive Personality? OCD? Both?

Addictive Personality? OCD? Both? Honestly, most people who know me well would say that I do have an addictive personality and OCD.  I’m not super bad with either but it could easily get out of control in a heartbeat. Sadly, addiction runs in my family.  I am totally aware so I am super mindful to …

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Taking the Smell out of Big Daddy’s Nose

Here I am, trying to make a feeble attempt at Taking the Smell out of Big Daddy’s Nose.  I have like 5000 kids and 2500 animals that live in my house.  Did I exaggerate?  Uhm, well…have you ever lived with a bunch of teenage boys?  Emotional girls?  Choose to take in every broken animal that …

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A Quarter of a Century

Dear Big Daddy, We have been married for 25 years, a quarter of a century! I have loved you for 299 Months, 3 Weeks, 2 Days, 11 Hours, 53 Minutes and 20 Seconds 1303 Weeks and 4 Days 9125 days 219,000 hours 13,140,000 minutes 788,400,000 seconds You are my friend.  My person and the love …

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The Little Squares of Life

The Little Squares of Life In The Little Squares of Life, what do you see?  I see skinny people with flawless makeup (the women anyway).  Also, I see homemade meals and clean, organized houses.  Pets that can speak 3 languages and never need walking because they can use the toilet.  Little humans wearing matching clothes …

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