Posted in Everyday, Health

Oh, How I Love Thee

I met a wonderful lady who has an equally wonderful Eeryore-ish husband.  I love this lady and I’m quite fond of her husband…his presence makes me smile.  She is just good all the way around.  Well, her Eeyore-ish husband mentioned, last Christmas, that his sweet wife had gotten him a new KINDLE FIRE for Christmas.  He was thrilled and so incredibly proud of it and her thoughtfulness.  I asked what all he did on his KINDLE FIRE and he said he like to watch Youtube videos.  I had never done that, but was curious as to what all Youtube had to offer.

I am now OBSESSED with Youtube and I subscribe to a few people and I love their videos.  One Youtuber (Itsjustkelli) introduced me to a product that I am simply in love with.  The ZOMBIE PACK is a facial, skin tightening, pore tightening phenomenon.  When I put it on….it begins hardening and tightening all over my face.  Now, I did, in the beginning use too much of the ZOMBIE PACK JUICE and it was incredibly runny.  I figured that out quick.  Since I used too much, I ran out of the juice when I still had like 8 little packets left.  I thought the ZOMBIE PACK JUICE was some special blend of greatness.  It wasn’t!  I ended up using water with the rest of my packs and it works just as well.

I LOVE to peel things (like a good sunburn) and this fits right into my insanity.  I go upstairs, wash my face, apply this ZOMBIE PACK, let it harden…pull up Hulu or Netflix…let it harden and then I peel till my little heart is content.  It is my happy place.  No one bothers me…I peel….I wipe off the excess (yes you do look like a zombie), I put some lotion on and then I vacuum up the mess in the morning.  It is a win win when I’ve had a stressful day.

I highly encourage you to check out the ZOMBIE PACK on Amazon…..

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Posted in Adoption, Budgeting, Couponing, Everyday, Health, Homeschooling, Inspirational Thoughts, Marriage, Medical, Once a Month Cooking, Organization, Saving Money, Truth and Honesty

Operation “Get Life Together”

Operation “Get Life Together” is underway.  Here is a bit of what all has been going on the last week or two…..

  • Scheduled:  Dental appointment!  This is HUGE because I do not like the dentist, but my teeth do not like me.  It is what it is.  I have had a toothache for a while and because I CHOSE not to do anything about it (excuses:  time, money, don’t want too, doesn’t hurt that bad, blah blah blah), I now have 2 choices…1) get it pulled (insurance pays) or 2) have a root canal (insurance DOES NOT pay).  I also have to have a wisdom tooth out and some cavities to be filled.  As good as I am brushing, my mouth has always been full of cavities (maybe its genes maybe it is lots o candy).  Anyhow, I have my appointment made for my extraction or root canal.  I got them cleaned.  I also have 2 other appointments I need to make and then I will be caught up with my mouth!  Yay me!  And because I’m awesome, I went ahead and scheduled 5 of my 7 kids an appointment for their teeth to be cleaned.  Yes, I’m a rockstar, I know.
  • Scheduled:  Mammogram!  Girls…take care of your boobies!!!!!!!!!!!!  Breast Cancer is curable if it is caught early!  Now that I’ve said that, I will say that it has been 5 years since I had my last one (practice what you preach, I know).  It was also scheduled for today….which I had to cancel because I didn’t want to take the 3 little boys to this appointment and I had no one else to watch them.  I did reschedule for the week after next. I will be keeping that one!
  • Scheduled:  Papsmear!  Girls…..take care of your girly bits!!!!!!!!!  Is it fun?  Heck no.  Is it necessary?  YES!  I did go, but to my chagrin, I was late and I had started my period.  Good times were had by all.  The nurse and doctor sat down with me and we discussed life, my body, what the problems were, etc.  We have a game plan and I have a new appointment on the 25th of August.  I will be getting my bloodwork done (haven’t done that in about 3 years), I will be doing a urine test, an ultrasound on my insides, a hysteroscopy (they scrape the inside of your uterus) and a papsmear.  Getting it all done in one day (I may throw in a tattoo for good measures cause it is right across the street).  Once all of this is done and the results come in, I will be getting a hysterectomy, a bladder sling, and my girl parts fixed.  I am stoked.
  • Scheduled:  Hunter’s OMS follow up appointment and his Pediatric Opthamology appointment.
  • Need to schedule:  eyeballs for all.
  • I have begun working on our ZERO based budget plan and will do a follow up of that when Big Daddy and I sit down and write it all out.
  • We have discussed our debt and how we are getting out of it.  We are on the same page.
  • I have *not* been to the gym yet.
  • I have a goal of getting back into the swing of going to church on Wednesday nights.
  • I have begun a “for me” project…more to come on that.
  • I rocked the freezer meals.  I went and bought our groceries back around a month ago and we still have a good month left of freezer meals….it will last us almost 2 mths!  We have only had to go to the grocery one time (for lunch items and some breakfast stuff).  I spent about $550 on that July trip and we are still going strong.
  • Get my freezer meal ideas on paper
  • Cleaned my room!
  • Organized the laundry room
  • Organized/cleaned the garage
  • Made my purse emergency kit
  • Made my van emergency kit

I’m rocking it all out.  If you would like any info on organization, cleaning, the kits I’ve made, meal planning, etc….drop me a comment below.  I’m considering doing a video on some of these things to help with those who are visual, like me LOL

Posted in Budgeting, Everyday, Health, Marriage, Once a Month Cooking, Organization, Saving Money

Ode to My Instant Pots

Oh, Instant Pot DUO80 7-in-1 Multi-Use Programmable Pressure Cooker, 8 Qt | Stainless Steel

I love you.

Yes, I do.

I love you.

My….oh….my….oh….my…..

I bought an INSTANT POT a while back and I fell in love.  It is not like the love I have for Big Daddy or Cal Sisto…..it is a love of reducing heat in the summer, cooking fast, skies the limit, and endless possibilities type of love.

My love is SO bad, that Big Daddy ended up getting me two more…so now I have a GLORIOUS 3 Instant pots!  I rarely use my stovetop anymore (the Instant Pot has replaced my hot air popcorn popper and my bagged popcorn because that isn’t too healthy).

It has also replaced my Rice Cooker/Steamer and my FANTASTIC Soup Maker (I really do still love my soup cooker).  Now, I still have 1 of my huge crockpots (I gave the other one away) because, in all honesty, the Instant Pot does a CRAPPY job using the “crockpot” function.

I saute’ the most, in it.  I use the steam function for my frozen vegetables (that is all I buy because you get more product, it is frozen at its peak so it does not lose the nutritional value, and it has nothing added).  Beware with cauliflower and broccoli.  Once your steamer basket is in the Instant Pot, and you have added your 1 c. water.  Place your broccoli or cauliflower, put the lid on, set it to seal, and then manually do it for ZERO minutes.  By the time it comes up to pressure, it is perfect. Anything over that and you will have straight up mush.

Macaroni and cheese in 6 minutes.

Once meat is sauteed, you can make spaghetti in about 6 minutes.

Rice…..perfect.

Boiled eggs…peel like a dream.

Soups in 10 minutes.

If you do not have one (or three)…………..PLEASE go and buy one.  It is totally worth it.

Posted in Budgeting, Health, Once a Month Cooking, Organization, Saving Money

Breakdown of My Freezer Cooking

As you might remember….I did a MASSIVE grocery shopping trip.  I did this in hopes I would be able to freezer cook all of our meals and save me time and save money

Our goal was to not go to the grocery all the time, except for things we do need, weekly (ie fruit, milk, special milk, bread).  The sad part of this grandiose plan, was not what I spent…not the cooking part….but the freezer space.  We, literally, ran out of space in a HUGE deep freeze, another deep freeze, a freezer in our outside fridge and our freezer in our inside freeze *cue tears*.

With that being said, I have not touched the stuff that I have frozen, yet, because I’m still cooking what is leftover in our fridge that I bought.  Does that make sense?

My grand total cost of all that is listed below was $597.  That is for breakfast, lunch, suppers, and side dishes.  This is also for a family of 8 on a good day….9 when the oldest comes…11 when the male friends of the oldest two girls come…13 when my bonus daughters are here…..you get the point.  One thing that we do, every year, is buy our meat (beef and pork) in bulk.  This year has been no different.  We were able to raise a pig and get her slaughtered, so she is in one freezer.  We also buy a full cow (you can buy a 1/2 or a 1/4 of a cow), from my granny’s cattle.  The pig was about $125 for processing and packaging.  The cow was about $800…maybe??? Little unsure of that cost.  We pull out the cost of both of those animals when we get our tax return back, so there was no extra “out of pocket expense.”  We used to raise meat hens, but we do not do that anymore.  We also have some laying hens…so we *always* have eggs.

With all that I did, and have to do…..I have 50 suppers/sides, breakfast and lunches for 50 days, as well….I spent $597 at the store.  Dividing this number by 50 yields $11.92…rounding to $12 cause I suck at math.  That $12 is for one whole day and all that I feed for all three meals.  If all 9 of us ate, here…the cost per person per day would be $1.33.  So…not bad.

BREAKFAST

Pancakes (made from scratch, not from bisquick….we are all about saving money)

French Bread

Zucchini Muffins

Banana Muffins (good gravy these were good……1/2 c. butter, 1/2 tsp. vanilla, 1 c. sugar, 4 REALLY ripe bananas, 2 eggs, 1.5 c. self rising flour.  Bake at 350 for about 50-55 minutes)

Carrot Muffins

Granola Bars

Granola

Fruit bars

McMuffins

Omelet Cups

Breakfast Cookies

Breakfast burritos (taking this off because I used my flour tortillas for enchiladas when I had leftover meat)

Lunch

Meat and Cheese sandwiches (turkey, ham, roast beef, bologna, fried bologna….provolone, American, swiss, cheddar)

Leftovers

 

Supper

Homemade Pizza x 7

Spinach, Ricotta and beef Enchiladas on a bed of rice

Chicken & Broccoli, Scalloped Potatoes, Green bean casserole

Beef Stroganoff

Mexican Casserole

Mexican Lasagna

Mexican, Ricotta, and Spinach Lasagna

Baked Pasta, Garlic Bread, Salad

Burgers/Hotdogs/Fries x 5

Tacos, Refried Beans, Rice x 3

Chicken stuffed cheese/spinach wrapped in bacon, Roasted Potatoes Sweet peas

Pork Chops, Hashbrown Casserole, Corn, Lima Beans

Chicken Cordon Bleu, Cream Corn, Baked Potato

Cheeseburger Casserole, Mashed Potatoes, Sweet peas

Chicken Alfredo, salad, bread

Round Steak with Mushroom Sauce, Broccoli and Bacon, Mashed Potatoes

Philly Cheesesteaks, Homemade fries

Greek Marinated Chicken, Fried Zucchini, Rice (I am not adding the Greek Marinated Chicken to my recipes because I did not like it.  We ate it, but we had a lot of chicken (on the bone) leftover.  I just pulled off the skin and I pulled the meat off the bone and froze it, so now I have chicken for another meal.)

Pork Roast with Feta and Mushrooms, Mashed Potatoes, Sweet peas

Baked Chicken, Cream Corn, Cauliflower and Broccoli Au Gratin

Beef and Broccoli, Fried Cauliflower rice

Garlic Cheddar Chicken, Mac and cheese, Roasted potatoes, sweet peas

Tater Tot Casserole, Green Bean Casserole, Corn

Pork Roast, Mashed Potatoes, Lima Beans, Asparagus/Feta

Ethiopian

Spaghetti, French Bread, Salad

Lasagna, Garlic Knots, Salad x 2

Breakfast (Sausage and egg casserole, bacon, biscuits, pancakes)

Soups x 7:

  • Stuffed Pepper Soup and Chili
  • Vegetable Beef and Cheeseburger
  • Chicken Noodle and Tomato
  • Tortellini and Zuppa Toscana
  • Broccoli and Potato
  • Enchilada and Beef Stew
  • Chili and Chicken Noodle
  • xtra chili

Roast/Potatoes, Asparagus and feta, Green Beans, Mac and cheese x 2

Posted in Adoption, Health, Medical

Going the Extra Mile

Post includes affiliate links.

This past week…..Hunter had his second round of Rituximab.  His first round was 2 weeks prior and it did not yield the results that we had hoped it would yield.  We did not see Dr. Sweeney (or any doctor for that matter) during that first round.  This time, however, we saw Dr. Sweeney, Dr. Bhalla, and a couple of students or interns….not sure…they did not speak.

I was able to ask many questions to Dr. Sweeney.  I felt like I was heard and he answered in a way that did not make me feel stupid, but in a way that I could understand.  He has a heart for children.  Any single man who knows the theme songs to ALL the disney movies and ALL the characters of each of those movies, is a man who is in tune with his audience of kiddoes.

I understood that we would know if this course of treatment was going to work within the next two weeks.  Hunter still has residual steroids in his system, as well as, IVIg.  In two weeks, though, all of that should be out of his system and all remaining B cells should be killed off by this last Rituximab treatment.  Then….we will either see improvement (aka remission) or we will need to rethink the course of action that we need to take.

In the meantime….we know his immune system is comprised.  To help with that, when we are out in public or around sick people…I went on the hunt for some face masks for children.  I could not find any.  I did get a few adult sized ones from my son’s orthodontist, but nothing that would fit his face.  I finally went to my “go to” place….Amazon.  Oh….I love amazon.  I found what I was looking for and they work perfectly (though he hates them).  CHILD’S FACE MASKS

My next course of action was to help ease his anxiety about going to the hospital.  Thanks to tiny veins and inexperienced nurses….he has been poked/prodded/laid on/man handled until I just about went all Hulk on them.  Then…we met the IV team.  Oh.  My.  Stars.  Let me just tell you….they are all angels sent from heaven.

I found this and let me just tell you….he looks adorable. A friend is going to embroider his name and “OMS Specialist” on it for me. It did not break the bank and it was on prime, so I got free shipping.

Maybe I went overboard….maybe I am coddling him. He is 3. He is my baby. He did not ask for any of this to happen and frankly…..at this point….within reason….the child will get whatever he needs to help him through this process.

Posted in Budgeting, Couponing, Health, Homeschooling, Inspirational Thoughts, Marriage, Medical, My Lady, Once a Month Cooking, Organization, Saving Money, Truth and Honesty

Enough is Enough

Tonight, I had this overwhelming feeling of being suffocated by debt.  I hate that feeling. I hate the fact that I am a slave to money.  That is not how it is supposed to be.  When we moved into this house, about 10 years ago…we had no debt (other than our previous house).  We do not do the whole credit card thing (learned our lesson from that), we didn’t have new furniture…if we did, we paid cash for it.  Our cars were paid for, no student loans…nothing.

Now…..shazaam……we have a van payment, a student loan, an equity loan, another type of loan, a house loan, medical bills, bills from where things have broken and they have to be fixed.  It could be worse.  I know that, but I feel like, right now, this is worse because I know better.  I know what Jesus teaches us and instead of walking that narrow path that He chose for us….we saw the bright shiny-ness of the wider road and we took it.  Now, we are standing on the little strip of dirt between the wide road and the narrow road.  I equate it, in my mind, as those little pieces of dirt between the different lanes of the interstate.  Where it is posted no U turn.  That is where we are standing.  The wide road is so shiny and it is filled with new vehicles, coach bags, sports obligations, vacations, and movies.  The narrow road is not so shiny, but it is being protected, from the elements, by these beautiful weeping willow trees.  It is filled with discipline, being trusted with little, tithing, paying cash, not serving two masters.

I am over it.  I am ready to walk on that narrow road…not sure if Big Daddy is, but I also know he is tired of it too.  This is scary.  It is a hard road.  We’ve walked on that road.  We’ve made sacrifices.  We succeeded.  We can and we will, in the Name of Jesus, succeed again.  It is time to hand over this endeavor and because we are so weak…..we need to lean on Him because He is SO strong.  He is our Strong Tower.

Another issue that we have given lip service too is our health/weight.  We are fat.  We are fat people.  We are not fluffy.  We are not round around the edges.  We are not jolly.  We are fat.  Straight up.  Our health sucks.  We get winded walking up the steps to the bedroom.  Big Daddy can’t hardly walk because of pain.  We have purposed, for years, that the next year will be the year.  It is the magical year we get fit.  We give it a week…we only lose 4 lbs of pee weight and we are done.  We want a double quarter pounder super sized with a coke the size of my face and a side of a double decker death by chocolate cake.

I am over it.  Done.  Just done.  I do not want to give the illusion that we eat crap all the time.  Frankly, I do not buy sweets (now there are other people in my house that do, then eat it all in one sitting). I do drink coke.  I am going to try and cut that down to 1 a day.  We only drink water.  I cook with tons of veggies.  We do not eat much bread or pasta.  We are fruit eaters…..we do not do things badly BUT we are completely inactive and we do not blink if we want to eat out…we eat out. So, we are affecting our health and our finances by poor choices along those wide roads.

I will be documenting our journey of getting out of debt and getting this fat off of us.  You are welcome to follow along.  You can subscribe to my blog >>>>>>>>in this side bar>>>>.  You can also follow me on any social media platform (also on that side bar).  If you have suggestions, by all means, give them too me.  Suggestions on stay at home jobs, how to make some extra money on the side, healthy recipes, or exercises.  Anything.  I am open.

Here’s to having my belly full of ENOUGH.

Onward and upward.

Posted in Essential Oils, Everyday, Health, Organization, Recipes

DIY Essential Oils Cleaners

Carpet Deodorizer

Empty container (I used an empty parmesan container…washed/dried well)

Baking Soda

10-15 drops of essential oil of your choice (I use purify cause it knocks out the smell of boy)

Mix well.  Shake on carpet before you go to bed to absorb the most smell.  Vacuum in the morning.

 

Room Deodorizer (think Febreze)

Spray bottle (I use those little ones from the travel section at walmart)

10-15 drops of essential oil (again, I use purify.  Be cautious of using lemon oil in a plastic bottle…it should really only be put in a glass or metal bottle)

1/4 c. witch hazel

Water

Pour in your witch hazel.  Fill to almost the top with water.  Add essential oil of your choice.  Shake before using.

 

Furniture Cleaner

Spray bottle

10-15 drops essential oil

1/4 c. vinegar

Water

Pour in your vinegar.  Add water to almost the top.  Add essential oils.  Shake before use.

 

Everyday Cleaner

Large spray bottle

Vinegar

Water

20 drops Essential oils (purify, Frankincense, tea tree, pepperment, etc)

Onguard Concentrate (optional but worth it as an added protection for fighting germs)

Pour 1/2 the bottle with vinegar, add a good squirt (about 2 T. Onguard Concentrate), fill up with water and essential oils (if you have a glass bottle you can use lemon).

 

Posted in Essential Oils, Health, Organization, Recipes, Saving Money

Buy TEA TREE OIL Get PURIFY Free!

Tea Tree retails at $25.33 and Purify retails for $24. Get BOTH for $21.14 (this includes shipping and handling.

Tea Tree: gets rid of zits, stops itching of bug bites, repels bugs and mice, helps with ear pain, also good for cleaning house.

Purify: smells good, eliminates odors (I use it in the kids bathrooms and the boys bedroom), it helps.with ear pain, and I use it in my cleaner.

If you are interested….comment below. Please feel free to share.

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Posted in Everyday, Health, Homeschooling, Inspirational Thoughts, Marriage, Medical, My Lady, Once a Month Cooking, Organization, Truth and Honesty

Motivation Monday

This funk has GOT to go….so go it will.  As my Lady always says “pull yourself up and get outta that pit.”  With that being said….I’ve got things to do, places to go, and people to see!

  • Get thank you cards mailed
  • Email G her letter from the kids
  • Make a dentist appt for me and Noah
  • Make dentist appts for the three younger boys
  • Reschedule eye appt.
  • Schedule ACT for Noah
  • Let him drive (insert me vomiting)
  • Pack for Lville and our next drs appt
  • Call dr with update on Hunter
  • Wear makeup
  • Work on Family calendar
  • Pull some homeschooling stuff together
  • Get my letter of intent finished
  • Call OT to cancel appt
  • Reschedule said appt
  • Clean my bedroom
  • Go through and super clean the boys’ rooms cause there is a nasty smell that, frankly, scares me.
  • Call my mama
  • Go see V’s new apartment
  • Set my month’s goals (yes, we are 1/2 way into July but why wait)
  • Start my Bible reading again
  • Clean of and prepare homeschool computers and tablets
  • Read to my baby
  • Finish Freezer cooking
  • Baseball……….Baseball………….and more baseball
  • Go and see my Lady.

This season has sucked.  This year has sucked.  I have not enjoyed any of 2017 and not a whole heck of a lot of enjoyment was had in 2016 LOL.  What holds me together is knowing that known of this surprises Jesus.  He has got all of this.  He has my family.  He knows the beginning from the end.  I just have to buckle in and deal with the twists and turns of the rollercoaster I have been living on for the last year or so.

Time to live.  Time to breathe.  Time for a new season of life.  Time for new beginnings…..this is where Eccl. 3 comes into play.

Ecclesiastes 3 (NLT)

A Time for Everything

For everything there is a season,
    a time for every activity under heaven.
A time to be born and a time to die.
    A time to plant and a time to harvest.
A time to kill and a time to heal.
    A time to tear down and a time to build up.
A time to cry and a time to laugh.
    A time to grieve and a time to dance.
A time to scatter stones and a time to gather stones.
    A time to embrace and a time to turn away.
A time to search and a time to quit searching.
    A time to keep and a time to throw away.
A time to tear and a time to mend.
    A time to be quiet and a time to speak.
A time to love and a time to hate.
    A time for war and a time for peace.

What do people really get for all their hard work? 10 I have seen the burden God has placed on us all. 11 Yet God has made everything beautiful for its own time. He has planted eternity in the human heart, but even so, people cannot see the whole scope of God’s work from beginning to end. 12 So I concluded there is nothing better than to be happy and enjoy ourselves as long as we can. 13 And people should eat and drink and enjoy the fruits of their labor, for these are gifts from God.

14 And I know that whatever God does is final. Nothing can be added to it or taken from it. God’s purpose is that people should fear him. 15 What is happening now has happened before, and what will happen in the future has happened before, because God makes the same things happen over and over again.

Posted in Adoption, Health, Inspirational Thoughts, Medical, Truth and Honesty

The Rogue Zebra Has Been Caught and Named

After almost 2 weeks of being in the hospital and having every single test run on him, we were beginning to feel the effects.  I was blessed by so much.  We had great nurses, attentive doctors…my sister arranged for her friends to bring us food and snacks.   My niece came visited, gave me breaks, brought food and toys.  My daughter came up and brought me coke and toys for the baby.  My uncle’s wife came bearing TONS of food and toys for Hunter.  I was blessed.  We continue to be blessed BUT we wanted a diagnosis.  We wanted answers.

Why was he shaking so violently?

Why were his eyes twitching all over?

Why is he sleeping so much/not sleeping at all?

Why couldn’t he walk?

Why did he scream when I stood him up?

Was he in pain?

Why couldn’t he sit up?

Why did he lean to the left, so bad, that I had to barricade him in?

Why couldn’t he chew/swallow?

Why?  Why?  Why?

I got him in the floor and we went for our daily “let’s make our legs work” walks around the nurses station.  While we were walking, we saw Dr. Sweeney and his team powwowing about our case.  I told them all not to talk to him or make direct eye contact because now, he was terrified of all people in scrubs, with white coats, or stethoscopes.  Everyone just kept on talking and while they were talking, they were watching. We had to walk in between the doctors to get through, so it gave everyone a great idea of who he is progressing or regressing.

Hunter noticed Dr. Sweeney and he stopped and spoke to him.  He told him that he liked him and he needed to come and visit him sometime (cue heart melting)….it took him a while to get that sentence out because his voice quivers and he has to really think about his words before they come out of his mouth.  Dr. Sweeney said that he was on the way and by the time we got to our room, he would be right behind us.

So, we headed back to our room.  We made it to the chairs outside of our room because when we approached our door…he began to cry saying he wanted to go home and not go in there anymore.  Broke my heart.  I didn’t know what to tell him.  We parked outside the room and watched the people walk by to help ease him.

Dr. Sweeney and his crew came up and I told him of his regressions and that by the third high dose steroid, he had stopped tremor-ing so badly, but that he is sort of stalled.  He still struggles with walking and his eyes were everywhere.  With his symptoms list, with his regressions, with his body’s response to the steroids…Dr. Sweeney was completely confidant in diagnosing him.  He said that the entire neuro team had gotten together, that morning, and reviewed everything, and collectively, they came up with this diagnosis.

Hunter has Opsoclonus Myoclonus Syndrome or Dancing Eyes Dancing Feet Syndrome. These are a good set of videos as to how Hunter is right now.  It documents the truncal ataxia, the walking, the rages, fine and gross motor skills.  Click HERE to view them all, if you are interested.  It is INCREDIBLY rare.  There is not enough known about it to have a cure, so this is something he will have for the rest of his life.

3 Ways OMS Can Occur

  • It could have been caused by a neuroblastoma (cancer) that his body recognized.  Once it is recognized as being “foreign”, the body produces B-cells that violently attack the cancer so that it is reabsorbed in the body.  Those “aggressive” B-cells do not just die off after the cancer is reabsorbed…it begins attacking the brain at the cerebellum (the part of the brain that controls your body movement) and the frontal lobe (which controls your moods).
  • Idiopathic (meaning it came from a virus)
  • It is a precursor to neuroblastoma (cancer) that can show up with the next few years.

We will be doing MRIs, CT scans, blood work, PET scans and urinalysis often to make sure there is not minute cancer hanging out.  We have had 8 rounds of high dose steroids, 1 round of IVIg immunotherapy, and will have a total of 3 rounds of Rituximab.

So far…we have seen little change.  We have good days and bad days.  We are all adjusting to our new normal and learning life.  I’m thankful to the doctors who heard me and were proactive in finding his diagnosis.  My prayer, of course, is for complete healing.

We are going to try and raise money, at some point, for a therapy dog for him.  We are wanting one for his walker/wheelchair needs and for his anxiety and PTSD in regards to doctors and hospitals.

If you have any questions, or if you child suffers from OMS, do not hesitate to comment here, or you can find me on facebook, instagram, twitter, and pinterest (all links are on the side bar).

Prayers are appreciated.  Fundraiser ideas are appreciated.  Thank you all for hanging in there and keeping up with this little series.  I will post more about this in the future.