What is an MIBG Scan?
According to the Cleveland Clinic, “An MIBG scan is used for localization of known or suspected neuroectodermally derived tumors, including pheochromocytoma, ganglioneuroma, ganglioneuroblastoma, paraganglioma, carcinoid tumor and neuroblastoma.”
This is something that I have requested from several hospitals but was always told no. Now, we are embarking on a new pediatric neuro who actually sat and listened. She read what I brought. Asked appropriate questions. Understood where I was coming from and was anxious to jump on Team Hunter!
She is allowing me (within reason) to dictate when we start our Dex. I’ve successfully pushed it from every 2 weeks to every 4. This month, I’m shooting for 5 weeks. This, of course, is dependent on how Hunter’s body reacts.
In conjunction with that, we are continuing with PEMF therapy, horse therapy, Symphony of cells protocol, IVIG monthly, and the maintenance that comes with all that. We are also heading back to St. Augustine for a one-day treatment. Lots of holistic treatments mixed in with traditional medications and therapies.
I digress on the topic. Today (June 13th), we (Hunter, Alyssa, and I) heading to Nashville for his injection. He has to have that solution in his body the day before the scan. We have also done pre-scan medication of Lugol. It is a 5% Iodine solution that is taken the day before injection, the day of injection, and the day after injection.
Tomorrow will be scan day. We should get the results back on Monday (I hope). This is going to rule out ANY Neuroblastoma. The longer a person is past onset of symptoms without cancer showing up with MRIs, CT scans, and blood work…the less likely that person is to actually have cancer. Therefore, it is dubbed “autoimmune.”
What We Have Operated On
This is the assumption our past doctors have been operating on. We are 2 years past onset, why take the time for this scan? Well, Dr. James is little miss Johnny on the spot and she wants to completely take that thought out of our heads and hers. I’m all for proactive, rule things out, kind of things.
In Lieu of the Scan
We came on down and went to eat. After eating we headed to the Nashville Zoo. It has been such nice weather. We got his wagon and off we trekked through the other side of the bamboo shoots.
It was so nice. When we got back, we couldn’t swim because we are trying to preserve his IV for tomorrow. Instead, we ordered pizza, played, and watched a marathon of Chopped shows.
Here is our feeble attempt at a selfie 🙂