A Day in the Life of my family. There are just some things a person…
When Life Gives You Lemons
Squeeze the Crap Out of Them and Smile
When Life Gives You Lemons, squeeze the crap out of them and smile. Today has been an emotional one for me. There has been nothing spectacularly bad happen, just somedays, the magnitude of everything hits me.
Mondays are therapy days and we are SO blessed to have such a great team of therapists that work with Hunter every single week. They keep a smile on their faces and they encourage Hunter (and me). We all work well, as a unit, to accomplish the greater goal of seeing Hunter succeed.
Heading to Horse Therapy at Cassidy’s Cause
Tears flowed, as we headed to therapy today. I just couldn’t keep it together and I can’t stand it when I’m overly emotional. Hunter was good, ready to go, and happily singing to the music we were playing. I, however, just let the waterworks flow.
We got there and our OT came with a smile on her face and new blocks to play with. We worked on getting his Theratog on (what a crapfest that thing has been) properly. Then, towards the end of the session, I asked the unthinkable.
Do you believe this is helping him?
Our OT is phenomenal. I mean tenderhearted, great at her job, sincere, loving, God fearing…she is awesome. She said what I was already feeling. I believe this is what makes our team good.
She knows the flu season is coming and Hunter cannot get sick. As well as, she sees the ebbs and flows of his condition. All the way, teaching me techniques and toys that can help him. We discussed just taking a break. She knows I need it. Just a mental break. There is also the knowledge that we do work with him here.
Next Up: Speech
Our SLP is the bomb. She is firm but good. The diligence of this woman and how she thinks outside of the box, for Hunter, amazes me. We had the same conversation, only this time, I lost my composure.
She quietly asked if I wanted to go to another room and then I just sat there and cried. The kindness this woman showed me humbles my heart. As she said, “I even buy the good tissue for moments like this.” LOL. Another God-fearing woman in this facility. She walks it and talks it.
We talked about what the OT and I talked about and she agreed. Again, we are going back in January, but she knows that I’m so tired. We have worked so hard and the ebbs and flow of ATLD1 is just a beast.
Last up, is PT. Tony…I am his fangirl. He is simply the best PT we have ever met and we have met several. Tony Stark is not his name, but that is the name that Hunter gave him from day 1.
He is our Ironman. He has let me sit and cry, while he plays music in the background. I kid you not. We have brainstormed, tried new techniques. I’m not afraid of his suggestions and he is open to mine.
Tony has taught me a level of patience I didn’t think existed. He loves Jesus, his wife, and his boys. He loves theatre, music, acting, dancing and his talent for working with his patients is amazing.
Again, he agreed.
Well, January to be exact. We are taking a break from our 3 hr per week therapy sessions. In January, we will come back, retest and regroup. I am hoping to be refreshed. Hunter will *almost* be 5 by then. I’m hoping that he will have gained some weight, as well.
Until then, we are going to be going to Cassidy’s Cause. It is a Horse Therapy in our local town. As Jesus would have it, Hunter will get to be in the same class as his sister. He will get to see her, his brother, and his Mamaw. There is a strong possibility that his Jojo and Papa will be there too.
Our big kids get to go and volunteer so this will be an all-encompassing family outing every week for an hour. I’m thrilled at how this will help Hunter with his core and strength. It will also strengthen the bond between siblings, grandparents, and great-grandparents.
Kick Some Butt
When he comes back to his Power of 3 team, in January, he will kick some butt! He will show the doctors that he will grow, succeed, and beat this terrible condition. God is good. I’m so blessed with the people that have come into my tribe to help my boy. Until then, we do horse therapy and watch how his ataxia improves.
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