For my sanity. RAD is SO hard to deal with. I'm so tired of having…
Make A Wish Foundation
Yesterday, my cellphone rang, and I didn’t answer it. I do not answer numbers I do not recognize, as I know it is probably a telemarketer and I do not want to deal with that. If it is someone that *needs* me, that is not a telemarketer, I know they will leave me a message.
Well…this time….this person left a message.
I checked my message and I realized that I truly needed to speak to this person.
I hesitantly called back because on one side…..I didn’t want to hear what she had to say. On the other hand, I did want to hear what she had to say. I’m sure I’m not the only person to every think/feel that.
This lady was from the MAKE A WISH foundation. I had, on a whim, filled out the info for this foundation to see if Hunter qualified. I remember this foundation from when I was a girl. I remember that kids, who had cancer or where terminally ill, got to make a wish for a final trip for them an their families before Jesus called them home.
Times have changed. The Make A Wish foundation still does that for terminally ill kiddoes but now (they may have always done this, but it is new to me) they extend this wish to kids who have life altering diseases. I had to check my pride, my sanity, and my not admitting that he has a life altering disease to fill this paperwork out. I cried through the whole thing. I kept thinking maybe he isn’t has bad as I think he is. Maybe this is just a “it will pass” type thing.
Then I heard the words “your son is medically fragile.” I heard the words “the longer he stays symptomatic, the more permanent brain damage is done.” Next was “we want to help him maintain and not lose anymore abilities.” Then, when my 3 yr old son looks at me and asks for his walker because it hurts to walk or he can’t……..that just gut punches me.
I filled that paperwork out about a month ago. I didn’t forget about it, but I didn’t pursue it either. Then, I was facing it….the phone rang. I did not answer it. I listened to my voicemail. I felt the warmth of tears filling my eyes. I called. Hunter was going to be granted a wish. I am humbled. I am sad. I’m excited for him to be allowed to be a kid without being surrounded by medical staff. I have all these emotions that I have a hard time processing.
I thanked them profusely. I tried to explain to Hunter that we were going to see Mickey Mouse and I told my other kids, my husband, and my sister. I should have had more excited inflection in my voice. My kids should have been more excited. Yet, we all knew the magnitude of his condition and that his case was reviewed and just by reading it on paper, he qualified.
We will get excited. We (I) will plan things. We are SO grateful for the opportunity and it will be so nice to get away for a little bit without stressing about 5000 different things. I get to meet up with a couple of adoptive families I have come to love through facebook. I get to see my sister in Georgia. There are so many good things that will come out of this.
God is good. I foresaw this ordeal before He created the Earth. He is showing us another bit of my rainbow and I’m so thankful.
I’d rather see my son healthy then to go on a vacation….
Until then….we are heading to Disney.
Thank you Make A Wish Foundation. Please know that you can donate your time, flight points, or volunteer your time for this wonderful foundation. One day, when I get done raising kids…I foresee myself doing all I can to see other families, in my situation, have some joy during their hard times.